A joint replacement registry is a system of collecting information of arthroplasty outcomes at a population (often national) level, in order to provide an evidence-base for safe and effective treatment options.

Background

The UK registry, the NJR, was set up as recommendation of a Royal College of Surgeons of England review into the high-profile failure of the 3M Capital Hip.[1]

Information collected

Registers collect information on a combination of hip replacements, knee replacements (both total and unicompartmental), shoulder replacements, ankle replacements and elbow replacements. Some countries exclude hemiarthroplasties done for traumatic hip fractures.

Initially designed only to record surgeon and implant performance, the main outcome collected was implant failure, however recently patient-reported outcome measures are being added.

Research

Given the amount of information stored, the data from many of the registries is used as the basis of scientific papers, for example on the metal-on-metal hip controversy.[2]

Worldwide registries

There are currently 31 national members of the International Society of Arthroplasty Registers (ISAR).[3] In addition, in the United States, there are 10 regional or private registries collecting data.

Country Type Year started Name
UK National 2003 NJR
Scotland National SAP
Ireland National 2014 INOR
Italy National RIPO
Portugal National 2009 RPA
Romania National 2001 RNE
Germany National EPRD
Egypt National 2007 ECAR
Australia National 1999 AOANJRR
Japan National 2002 JAR
Sweden National 1975 SKAR
Sweden National 1979 SHAR
Canada National 2003 CJRR
The Netherlands National 2007 LROI
Slovakia National 1926 SAR
New Zealand National 1999 NZJR
Denmark National 1997 DHR
Norway National 1994 NAR
Finland National 1980
Iran National 2016 IJR[4]
United States National 2012 AJRR
Regional CJRR
Private 2001 KPTJRR

References

  1. "RCS 3M report" (PDF). Retrieved 24 August 2014.
  2. Smith AJ, Dieppe P, Vernon K, Porter M, Blom AW, National Joint Registry of England and Wales (Mar 2012). "Failure rates of stemmed metal-on-metal hip replacements: analysis of data from the National Joint Registry of England and Wales". Lancet. 379 (9822): 1199–204. doi:10.1016/S0140-6736(12)60353-5. PMID 22417410.
  3. "ISAR directory". Retrieved 24 August 2014.
  4. Aslani, Hamidreza; Nourbakhsh, Seyed Taghi; Lahiji, Farivar A.; Heydarian, Keykavoos; Jabalameli, Mahmood; Ghazavi, Mohammad Taghi; Tahmasebi, Mohammad Naghi; Fayyaz, Mahmoud Reza; Sazegari, Mohammad Ali (April 2016). "Iranian Joint Registry (Iranian National Hip and Knee Arthroplasty Registry)". The Archives of Bone and Joint Surgery. 4 (2): 192–196. ISSN 2345-4644. PMC 4852051. PMID 27200403.
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